MG support groups

MG support groups can be found through:

The Myasthenia Gravis Foundation of America (MGFA) http://myasthenia.org
MG Foundation Facebook group http://www.facebook.com/groups/6126913853

Myasthenia Gravis Association of Kansas City http://mgakc.org
MG Association of KC Facebook page http://www.facebook.com/mgakc

Myasthenia Gravis Foundation of California http://www.myasthenia-ca.org/

Myasthenia Gravis Association of UK http://mga-charity.org
MGA UK Facebook page http://www.facebook.com/Myastheniauk 

If you know of information to find other support networks, please add information about them in the comment box below and we will add them to this page later. Thank you.

There are also an increasing number of groups on FACEBOOK, including:

Myasthenia Gravis Friends is a support group for all Myasthenia Gravis sufferers, friends, and family members looking for answers.
It describes itself as “This group is about that part of being ill… the part of you that doesn’t hurt or ache, that isn’t less able or exhausted. The part of you that tries to live life as it comes. Your MG may differ every day. Yet, you are still you. You and me, we all cry, enjoy, party, laugh, hug. Being long term ill doesn’t change that.”

One of the largest groups with a very active flow of questions and answers between patients is Myasthenia Gravis with almost 3000 members worldwide.

Facebook group MG Awareness World-Wide is aimed at sharing ideas on how to spread awareness. Please email if you’d like to join us there.

There are also Facebook groups for MG children, such as:
MGA National Children’s Branch, an open Facebook group with a website calledMyasthenicKids at http://www.myasthenickids.org/

There are also some Facebook pages, too. Such as:
Anita Ollinger’s “I’m not drunk, I have Myasthenia Gravis
Alice White-Kaminski’s “Life with Myasthenia Gravis (MG)
Jessica Ali’s  ”Purely MG Awareness – in memory of Safa Leila

There must be many more Facebook and non-Facebook support groups, so would you please comment below and share details of the groups you find valuable so that others can find them, also? Thank you.

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Myasthenia Gravis Association of Western Pennsylvania
This is a Treatment and Advocacy Center for MGer’s in the tri-state area around Pittsburgh.
http://www.mgawpa.org/

Amy Schindel says:

I’m founding (yikes) the Iowa MG support group. First meeting is January 28th from 10-12 am at the Ames Public Library in Ames Iowa. (515 Douglas Avenue). Anyone with MG, their loved ones and caregivers are welcome to attend. RSVP is encouraged. Call or text 515-708-5386, or email amy.schindel@gmail.com (so I can find out if anyone is actually coming…) Thanks!